A
workshop at the Center for Twentieth Century Studies
University of Wisconsin-Milwaukee
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Session Three:
Issues Relating to Informed Consent
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What does "informed consent" mean when both group and individual are involved?
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What collective risks and potential benefits should be disclosed for genetic
diversity research?
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What methods of community consultation are effective in securing informed,
voluntary group participation?
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How should researchers deal with ex-patriate communities whose views about
participating in genetic diversity research differ from their community
origins?
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To what extent can groups retain the traditional rights of individuals
to confidentiality and free withdrawal from research in genetic diversity?
Transcripts:
Questions and Answers
Discussion Groups Reports |
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